Cystic Fibrosis

What a whirlwind of a month. Sorry for not posting.

Cystic Fibrosis.

A phrase that never meant anything to us - until now.

With all of the battery of tests Elayne has undergone for her chronic cough, this was an easy one to eliminate. She passed her newborn screening for it, after all. And my tests during pregnancy all came back normal too.

But then her results came back elevated. Not positive or negative. Just elevated.

So for that past month, we have monitored weight and coughs and surfed the internet for answers. Until this week when we finally had a follow up appointment with her pulmonologist (after what felt like months). His diagnosis? Negative for Cystic Fibrosis. His reasoning? His patients who have Cystic Fibrosis have results off-the-charts and hers were simply elevated.

But.

BUT!?

Because her levels weren't off-the-charts low, the pulmonologist thinks a combination of the three of us are carriers for Cystic Fibrosis. While not devastating, this news has the potential to affect our future plans and possibly Elayne's future plans too.

In the meantime, she officially has asthma/reactive airway disease, allergies, and acid reflux-induced congestion. She is on breathing treatments for the foreseeable future and will hopefully outgrow all of it in the future. Will keep you posted!