It's time for us to get away. I mean, really get away.
That means it's time to head to the cabin.
Elayne will be with my parents and Phillip's throughout the weekend while we trek to east Texas with a few friends for quiet, rest, and lots of nothingness. No chores. No laundry. No obligations. No to-dos. A lot of nothingness.
Really looking forward to it.
Friday, May 30, 2014
Friday, May 23, 2014
The Cough That Still Won't Stop
The coughing saga continues, y'all.
Elayne is still coughing. And we still are having to go through doctors and tests to see what is causing the cough. Tests are coming back "normal" for someone with chronic cough and congestion. Meaning, the doctors keep seeing the inflammation and redness on her x-rays and procedures, and observe the congestion repeatdely. However, no cause is to be found.
A lot of what we're doing is trial and error. We've ruled out almost all of the major worrisome causes of cough and congestion. Now our goal is to treat the symptoms and observe as she gets older, hoping she'll eventually grow out of it.
Laryngoscope - signs of redness, swelling, and congestion but no abnormalities.
Swallow Study - slight aspiration in fast-flow nipples, which is typical of babies.
Allergy Testing - negative for allergens.
Formula Changes - no improvements observed.
Inhaler - no improvements observed.
Acid Reflux Medication - no improvements observed.
Two Allergy Nasal Sprays - no improvements observed.
Chest X-ray - signs of inflammation characteristic of a chronic cough.
No we are on to breathing treatments, an Upper GI scan to see more areas other tests couldn't, and a Cystic Fibrosis screen that will almost certainly come out negative (just performing it for definite results).
Elayne is still coughing. And we still are having to go through doctors and tests to see what is causing the cough. Tests are coming back "normal" for someone with chronic cough and congestion. Meaning, the doctors keep seeing the inflammation and redness on her x-rays and procedures, and observe the congestion repeatdely. However, no cause is to be found.
A lot of what we're doing is trial and error. We've ruled out almost all of the major worrisome causes of cough and congestion. Now our goal is to treat the symptoms and observe as she gets older, hoping she'll eventually grow out of it.
Laryngoscope - signs of redness, swelling, and congestion but no abnormalities.
Swallow Study - slight aspiration in fast-flow nipples, which is typical of babies.
Allergy Testing - negative for allergens.
Formula Changes - no improvements observed.
Inhaler - no improvements observed.
Acid Reflux Medication - no improvements observed.
Two Allergy Nasal Sprays - no improvements observed.
Chest X-ray - signs of inflammation characteristic of a chronic cough.
No we are on to breathing treatments, an Upper GI scan to see more areas other tests couldn't, and a Cystic Fibrosis screen that will almost certainly come out negative (just performing it for definite results).
Tuesday, May 20, 2014
Winning or Losing?
It's taken me a bit to write this post. I don't really know where to begin.
Last week my beloved grandmother passed away due to complications associated with lung cancer.
Someone put the cause as "losing the battle with cancer." A battle in which someone wins and someone loses? Huh. Not sure how I feel about that one.
I'm not sure there is ever a winner with cancer. And I'm not sure someone who can finally escape the pain of this world and live with their creator in heaven is considered a loser. Linda didn't win. And she certainly didn't lose. She's just gone.
She's gone and we're left here to remember her until we see her again. Holding on to the memories... that's the tough part. Remembering the smells and feelings but struggling to remember every detail of her face. The pain in never being able to remember everything but never being able to forget other things.
Loss.
Last week my beloved grandmother passed away due to complications associated with lung cancer.
Someone put the cause as "losing the battle with cancer." A battle in which someone wins and someone loses? Huh. Not sure how I feel about that one.
I'm not sure there is ever a winner with cancer. And I'm not sure someone who can finally escape the pain of this world and live with their creator in heaven is considered a loser. Linda didn't win. And she certainly didn't lose. She's just gone.
She's gone and we're left here to remember her until we see her again. Holding on to the memories... that's the tough part. Remembering the smells and feelings but struggling to remember every detail of her face. The pain in never being able to remember everything but never being able to forget other things.
Loss.
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